When a family member has FTD due to a genetic mutation, you may wonder if you have inherited it. You may want to meet with a genetic counselor to learn more about your options, then decide if you want testing now, later, or never. Watch this short video to learn about genetic counseling and testing so you can make an informed decision.
Learn about genetic counseling and testingFrontotemporal dementia (FTD) may run in your family.1 Genetic testing and counseling can identify whether you or your family member have an FTD gene mutation and what that means.
Genetic testing can examine your DNA for changes or mutations in chromosomes, genes, or genetic code that are associated with FTD.
Receiving genetic testing is a very personal decision that can give you information about your level of risk for familial (hereditary) FTD.
Before you determine whether genetic testing is right for you, consider discussing with your doctor and your family about how this could impact you and those you care about. There are professionals who can help you understand the impact of genetic testing, such as genetic counselors and advocacy groups.
Genetic forms of FTD
There are genetic (inherited) and nongenetic (not inherited) forms of FTD.1 Genetic forms of FTD—when FTD is passed from parent to child—are the result of gene mutations.1
Genetic testing can:
- Identify an FTD gene mutation
Genetic counseling can help you and other family members:
- Understand the genetic testing process
- Understand how genetics contribute to disease
- Decide on whether to get tested
- Decide who should know the results of the testing, since this information can provide relief and/or anxiety
Genetic counseling may also include:
- Education about genetic testing, disease management and prevention, and available resources
- Explanation of your medical history, results, and risk for disease
- Information on how the results could impact your job and insurance
- Advice on how to discuss the results with your family
